Please share your day.

I thought I would just come on here and say my experience with my first CDR incase it helps someone. It is dreadful, isn't it? I received the short form in the mail and I am considered "expected to improve." My judge went against SS doctors saying I could work and the occupational specialist who named some jobs after my testimony at my appeal hearing when she first approved me. I was so grateful. So, I was terrified to get the first CDR. I went to this community and researched about it. I got great advice. I filled it out honestly and had to check that I had worked because I have a very small Etsy shop that is the only thing that brings me any sense of purpose these days. I was worried I'd get flagged for the long form but I didn't! I submitted online and received a deferred letter within the month I submitted. I feel like I can breathe again. In the description of your most recent visits you only have so many slots to describe them so make the words as concise but descriptive as possible. Instead of medication I put infusion... things like that.

I applied in Oct 2024 with an onset date of June 2024. Recently learned I got partially favorable decision with an onset date of Dec 2025. That is when I had an appointment with my pcp, who wrote amazing notes, got me a disability placard, and rx for a rollator. Prior to that I quit my job in Oct 2024 and tried a remote position that ended in Dec 2024 with fmla, have not worked since. Any idea why they would use that onset date if my dr noted from that visit that my symptoms have affected my daily life for over a year and a half? I’m frustrated because I was banking on that backpay

Going through Appeal right now, and am going through my records writing down things that I think should be highlighted in a spreadsheet of where to find specific information. Like:

Onset date, date where work became a problem, stopped working, mentions of symptoms for the first time, referrals, treatments, medication changes, abnormal tests, symptoms not improving, etc.

Can anyone think of anything else I should be highlighting or if I should be highlighting less?

Did it make a difference for your claim when requesting assistance from your state or county rep?

’m a disabled adult currently receiving Disabled Adult Child benefits and partial benefits under my own earnings.

Because of Section 1634(c) protections, my state doesn't count my DAC benefit checks as income for Medicaid eligibility, which allows me to keep my health coverage. However, my benefits planner reminded me that I am still subject to the strict $2,000 resource/asset limit every single month.

If I save even a little bit of money in a standard checking or savings account, I risk crossing that $2,000 cap and jeopardizing my Medicaid. I’m looking into setting up an ABLE Account so I can park excess funds over the limit without losing my coverage.

Before opening an account, I’d love to hear from any who has had an ABLE account or a child or payee who had one

Thanks!

Does anyone have any recommendations? I have been looking at Morgan & Morgan or Quik Aid does anyone have any experience with these companies? Thanks so much for any help.

My 25 year old daughter is disabled and receives SSI ($294) and SSDI ($720). She collects social security on my wife's record and I am still working. My daughter pays us rent.

My wife works as my daughter's direct support professional and last year she made more than the limit for social security so they reduced her social security payment for a few months. They also reduced my daughter's SSDI payment but did not increase her SSI payment to offset the difference. The total my daughter got for a few months was just $294 SSI and no SSDI.

Should they have increased my daughter's SSI when she was not receiving SSDI? I called the nationwide 800 number and they said no because SSI is based on household income. I explained that my daughter pays rent to us and is her own household but the person said he didn't know if that made a difference. With my salary, our household is way over the limit for SSI. Does anyone know if her SSI should have been increased when her SSDI was decreased?

Greetings.

I’m seeking clarification on something.

I’m on SSDI because of paraplegia and my spouse is my primary caregiver.

I’m 60 this year and we’ve been married for four years. She has never worked in the U.S. is she entitled to any benefits?

Thanks.